Patient and Public Involvement (PPI) in research means working with members of the public to plan and carry out research. YORA is committed to engaging with members of the public with ongoing research within the field of obesity. For more information about PPI visit the NIHR INVOLVE website at the following link and the People in Research page at the following link.
PPI is rapidly becoming a vital component of all healthcare research and needs to be considered by researchers to ensure that their research is more relevant to the people it is trying to help and improves the experience of participants. For researchers who will be submitting applications for ethical review, we recommend reading the INVOLVE statement to provide clarity and guidance on public involvement in research and the requirements of Research Ethics Committee (REC) review.
The NIHR Research Design Service for Yorkshire and Humber (RDSY&H) provides resources and advice to researchers on how to involve members of the public throughout their research. For more information about public involvement and how the RDSY&H can support you check out a pre-recorded introductory presentation. The presentation is split into two parts and the links are as follows:
If anyone wants to request support from the RDS then they should complete this form and an adviser will get in touch: https://www.rds-yh.nihr.ac.uk/contact-us/request-advice/
People in Research: Public involvement in research is when the research is carried out with or by members of the public rather than ‘to’, ‘about’, or ‘for’ them. This includes, for example, working with research funders to prioritise research, offering advice as members of a project steering group, commenting on and developing research materials and undertaking research with research participants. For members of the public who would like to get involved in research, or researchers who want to find members of the public to get involved in their research please visit the People in Research website.
A number of PPI hubs have been established at Universities across Yorkshire, including:
- Leeds Beckett University: https://www.leedsbeckett.ac.uk/blogs/expert-opinion/2016/01/maximising-patient-and-public-engagement-in-healthcare/
- University of Leeds: https://ctru.leeds.ac.uk/patient-and-public-involvement/?cn-reloaded=1
- Sheffield Hallam University: http://www.awrc-publicinvolvementinresearchgroup.co.uk/
- University of Sheffield: https://www.sheffield.ac.uk/scharr/ppi
- University of Huddersfield: https://www.hud.ac.uk/news/2018/july/ppi-in-health-research/
Ken Clare of the European Coalition for People living with Obesity (ECPO) has been appointed to start developing a PPI centre at Leeds Beckett University that will serve the YORA network – with updates on this to follow soon. Ken recently gave a brilliant presentation about PPI at a recent YORA event, which can be seen at the following link.